CPT Doctor Qs

So, tomorrow is the big day, taking a big step in our CPT journey.  We are meeting with our first doctor at Shriners Children’s Hospital, and I’m not going to lie – I’m nervous.  I’m hoping for the best, but I honestly and truly believe we’ve been assigned to the Read more…

I Am Not Alone

Why? Because of friends. Specifically, new Facebook friends. I haven’t really been very open about our journey yet. For me, that’s unusual. When My older daughter had her first seizure, the first thing I did (well, after calling family) was post on the way to the hospital, asking for prayers. Read more…

Researching

So… We’re waiting. 1 to 2 weeks to hear from Shriner’s. But I’ve never been good at waiting with my thumb up my butt. So… Research. This is going to be a long play. Like, greater than a decade. So, here we go. This sucks. A lot. Congenital Pseudarthrosis of Read more…

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