6 months Post-op McFarland Bypass (done 2/21/2018) Looks much the same, nice and straight though! If you look closely, you can see the graft is much less defined, so that is positive! I was a little disappointed to see this x-ray. I was hoping for something far more dramatic, but Read more…
I had a sad tonight. Amy told me she wanted to walk on 2 legs, like her brother, and like me. She said she wanted to run fast, but running fast makes her special leg tired, so she has to go slow. She’s never talked about feeling limited before, so Read more…
So I have a problem. Amy is doing awesome. Too awesome. She is sleeping without a brace, and if I put her to bed in it, she’ll take it off. What a the turkey. We are now potty-training, and she’s doing super well. But I’ve been noting she’ll get up Read more…
I never understood why i was always told by the community to wear an old brace to swim/at the splash pad/beach. Wow. Okay, I get it now! ? Salt water is NO JOKE!
4 months 4 weeks 3 days Post-op McFarland Bypass (done 2/21/2018) Couple things to take note of: 1st, up at the top the graft used to stick out a lot more. Now it’s not. It’s HEALING!!! ??? 2nd- the split in the graft is filling in! 3rd- Damn me if Read more…
Summer is officially here, and with our cruise coming up, I was stressed about finding water shoes to protect her feet from hot sandy beaches. Shoe shopping. It fills me with dread. At Wal-mart, I found a good pairs of water shoes for my sons, but nothing I particularly liked Read more…
Shoe shopping was the usual headache. We tried on nearly every pair at Payless, then moved on to Macy’s, where I knew we could find a pair of converse shoes. Unfortunately, they didn’t have pink ones in both sizes we needed. But he gave me a discount on the 2nd Read more…
Brace #8 today, and it looks great, and is another new design! Look at this print! Scooby looks AWESOME! I was pretty surprised- I expected him to be a lot smaller, and the pattern busier. But Amy is happy, so I am as well. I really, really like our new Read more…
Today we’re at Stanford’s Eye Institute checking for tumors in Amy’s eyes. First she had a regular eye exam, looking to see if she had any common issues, like needing glasses, lazy eye, or any structural issues. (Nope) Then she checked her for any lich nodules (common with NF) and Read more…
We bought new shoes today, always a struggle, but I found a pair of cute sandals at Payless. I took a little video because she decided she wanted to walk. She really only feels comfortable when holding onto to something/someone. 11 weeks, 3 days post-op