I am not happy with our orthotist. Today Amy was supposed to get her new brace. I have refused delivery. Apparently the reason her brace is so much straighter is not because her leg is straighter, but because her orthotist decided to make it straight- even though her leg isn’t Read more…
November. Novembers have been a rough month for me lately. In 2015, November was the year my older daughter was admitted into the hospital. Her seizures were getting closer and closer together and becoming even more injurious. It was awful. Last year, November 2016, Amy had had that fall and wasn’t able Read more…
Amy made a new friend, one her age with the same condition. We’ve never met anyone who has a special leg like Amy, so it was awesome to connect today. The pair became fast friends. Amy showed off her pink brace, and Salome showed off her butterfly prosthetic. Amy was Read more…
I haven’t really been happy with Amy’s new brace for many reasons, but most were somewhat nitpicky. Two were not. First, the looooong foot plate. Unsurprisingly, after 11 days, she managed to snap that sucker right off, leaving a dangerous point. (I had that cut and sanded off.) Second, it’s Read more…
Amy is going to be Batgirl for Halloween, and has black tights to wear. But… brace. What to do? a) Wear the tights under the brace, and rock the brace in all its glory. Batgirl can have a special leg, plus you don’t want her to get too hot! b) Read more…
The story so far, does anyone else think that her leg is getting straighter???
Delivery Day for Brace #5… and the jury is OUT. I find it interesting that the front part ends higher than any of the others to date. Interesting isn’t the word – how about a little disturbing? The pattern, “Cool Girls” looks adorable on pink padding! Also pink socks, which Read more…
I have news!!! Dr. Hoffinger just called! Dr. Davidson (in PA) says Amy would be a GREAT candidate for the surgery!!! Pennsylvania? Texas? California? Not sure what our next step will be, but I’ll know more in a week. OMG, is this actually happening??? I’m freaking out, but cautiously excited!!! Read more…
Just getting around to posting- it’s been a crazy week! ? Amy and I met her new orthotist. He seems knowledgeable and nice enough. Jury is still out on him though. Amy was not impressed. But, Char was there and being a pill, so we’re trying not to judge him. As you Read more…
Made it to Stanford okay, and early! We’ll probably be chilling in the waiting room for awhile. Amy made a new friend to play with, so she’s happy. X-rays today! Today was a big day, because first, I had a burning question. But first, the good news! Amy’s leg Read more…