Questions for Perspective Orthopedic Surgeons

1. What do you think care plan should be for my child?
2. Do you recommend surgery for my child at this time, or would it be best to wait until s/he is older? What sort of surgery?
3. How long have you been treating Congenital Pseudarthrosis?
4. How many patients have you treated in that time?
5. How often have you achieved union?
6. How often have these kids refractured after achieving union?
7. Under what circumstances will you recommend amputation?
8. How often have you recommended amputation for your pseudarthrosis patients?
9. Did you ever feel you didn’t amputate soon enough?
10. Would you recommend a brace for my child? How far up the leg should it go? Why?
11. How long will it take to make, and when can we start? How can we protect his/her leg in the meantime?
12. Are there any daily activities that we should limit?
13. Should she wear the brace during sleep? Swimming? Bathing?
14. How do you feel about telescoping rods vs fixed rods? Fixators? Why?
15. Do you regularly use BMP in rodding surgeries?
16. How do you feel about bone grafts? Where do you like to take them from?
17. How do you feel about using infused bisphosphonate?
18. What if we begin to notice a discrepancy in leg length or foot size? What then?
19. How often will we take x-rays and get new braces?
20. Do you have an orthotist you prefer/recommend? Are you open to working with anyone I might choose?
21. What about physical therapy?
22. What do you think of Dr. Dror Paley’s method for treating CPT?
23. What sort of outcome do you see for my child at this time?

Questions for Patients with Intact/Bowed Tibias

1. What is the emergency plan if I suspect a fracture?
2. If s/he stays fracture-free, do you plan to straighten the bone? If so, how?
3. What else (if anything) do you recommend to protect and/or strengthen the bone? What about the leg muscle?
4. How do you feel about the McFarland Bypass procedure?