Just got the call! Amy’s surgery will be happening at Stanford on February 21st! We will be in the hospital only one night, so we will be asking not to have any visitors while we’re working on pain management. ❤️ I can’t believe it! I’m so excited!!! Wait… 3 WEEKS? That’s Read more…
Amy’s surgery was just pushed off to the end of April, due to hospital availability/privileges. Poop. ? We’re going on a cruise to Mexico in June. We can’t go with her being a couple weeks post-op! No!!! ?
We have a (tentative) surgery date! March 15th- Modified McFarland Bypass. It’s tentative because we have to wait for permission to do the surgery at a different hospital. Time to make plans… time off work, arrangements with daycare, wheelchair/walker, contact Child Life about a tour… Wow. Loads to do! ❤️ Step Read more…
Decision Day. Wait for her to break, or surgery? California, Texas, or Pennsylvania? Never have I ever, been so nervous. Amy, of course didn’t care. She’s playing and having fun while her daddy and I are sitting quietly whispering and wringing our hands. She has no idea that her Read more…
November. Novembers have been a rough month for me lately. In 2015, November was the year my older daughter was admitted into the hospital. Her seizures were getting closer and closer together and becoming even more injurious. It was awful. Last year, November 2016, Amy had had that fall and wasn’t able Read more…
I have news!!! Dr. Hoffinger just called! Dr. Davidson (in PA) says Amy would be a GREAT candidate for the surgery!!! Pennsylvania? Texas? California? Not sure what our next step will be, but I’ll know more in a week. OMG, is this actually happening??? I’m freaking out, but cautiously excited!!! Read more…
Made it to Stanford okay, and early! We’ll probably be chilling in the waiting room for awhile. Amy made a new friend to play with, so she’s happy. X-rays today! Today was a big day, because first, I had a burning question. But first, the good news! Amy’s leg Read more…
One Step Forward! I got an email today from Dr. Paley from the Paley Institute! I had asked if there was anyone out here that he had confidence in that performed his Paley X-Union procedure. Sadly, the answer is no. So that was a bummer. However, he DID say that Read more…