Orthotics
Brace #6
Guess who got a new brace today? (Brace #6!) This one is kinda back to the old design. It’s (finally!) tall enough, and the front piece is riveted on, so it can’t be misplaced. That’s kinda cool! Fitting it was Read more…
Orthotics
It Shouldn’t Be This Hard!
I am not happy with our orthotist. Today Amy was supposed to get her new brace. I have refused delivery. Apparently the reason her brace is so much straighter is not because her leg is straighter, but because her orthotist Read more…
Life with CPT
November Worries
November. Novembers have been a rough month for me lately. In 2015, November was the year my older daughter was admitted into the hospital. Her seizures were getting closer and closer together and becoming even more injurious. It was awful. Last Read more…
Life with CPT
She has a Special Leg Like Me!
Amy made a new friend, one her age with the same condition. We’ve never met anyone who has a special leg like Amy, so it was awesome to connect today. The pair became fast friends. Amy showed off her pink Read more…
Orthotics
Making Brace #6
I haven’t really been happy with Amy’s new brace for many reasons, but most were somewhat nitpicky. Two were not. First, the looooong foot plate. Unsurprisingly, after 11 days, she managed to snap that sucker right off, leaving a dangerous Read more…
Life with CPT
Halloween Costumes and Braces?
Amy is going to be Batgirl for Halloween, and has black tights to wear. But… brace. What to do? a) Wear the tights under the brace, and rock the brace in all its glory. Batgirl can have a special leg, Read more…
Life with CPT
Progression 2016-2017
The story so far, does anyone else think that her leg is getting straighter???
Orthotics
Brace #5
Delivery Day for Brace #5… and the jury is OUT. I find it interesting that the front part ends higher than any of the others to date. Interesting isn’t the word – how about a little disturbing? The pattern, “Cool Read more…
Surgery
HOFFINGER CALLED!!!
I have news!!! Dr. Hoffinger just called! Dr. Davidson (in PA) says Amy would be a GREAT candidate for the surgery!!! Pennsylvania? Texas? California? Not sure what our next step will be, but I’ll know more in a week. OMG, Read more…
Orthotics
It Broke?!
Just getting around to posting- it’s been a crazy week! ? Amy and I met her new orthotist. He seems knowledgeable and nice enough. Jury is still out on him though. Amy was not impressed. But, Char was there and being a Read more…
