Shoe shopping was the usual headache. We tried on nearly every pair at Payless, then moved on to Macy’s, where I knew we could find a pair of converse shoes. Unfortunately, they didn’t have pink ones in both sizes we needed. But he gave me a discount on the 2nd Read more…
Brace #8 today, and it looks great, and is another new design! Look at this print! Scooby looks AWESOME! I was pretty surprised- I expected him to be a lot smaller, and the pattern busier. But Amy is happy, so I am as well. I really, really like our new Read more…
Today we’re at Stanford’s Eye Institute checking for tumors in Amy’s eyes. First she had a regular eye exam, looking to see if she had any common issues, like needing glasses, lazy eye, or any structural issues. (Nope) Then she checked her for any lich nodules (common with NF) and Read more…
We bought new shoes today, always a struggle, but I found a pair of cute sandals at Payless. I took a little video because she decided she wanted to walk. She really only feels comfortable when holding onto to something/someone. 11 weeks, 3 days post-op
So here we go again! This is Carly, Amy’s new orthotist. (5th time is a charm!) Within 2 minutes, we knew she was a better fit. After looking at the last two braces, she decided it was best to remake the brace. She shook her head a lot at the Read more…
My fortune today, I laughed when I saw it. ❤️ Today we got to take part in a class for medical students studying anatomy. Today’s topic was bone growth and bone abnormalities. That’s where I come in. Amy’s Daddy and I had the opportunity to present Amy’s case, from birth to Read more…
Amy had her 1st bath today. She wanted NO PART of it. She fought all the way to the tub, holding her leg out of the water. “I want it dry!” But eventually she got tired and her leg sank into the water. After a bit, she starting playing in Read more…
10 weeks 5 days Post-op McFarland Bypass (done 2/21/2018) We tried to distract Amy with headphones and an iPad. Total fail. There was screaming. ? But, this new cast-guy is a wizard. Never have I seen anyone whip off a cast so fast! Very impressed. Wow! Look at that lateral view. Looks Read more…
The alternate title of this post could be “The Moronic Orthotist Who Obviously Hates My Baby” *sigh* Anyways… Today we got brace #7! I was surprised to see we had (yet another!) new brace design- since I was ridiculously specific about every aspect of the brace I wanted… But hey! Read more…