4 months 4 weeks 3 days Post-op McFarland Bypass (done 2/21/2018) Couple things to take note of: 1st, up at the top the graft used to stick out a lot more. Now it’s not. It’s HEALING!!! ??? 2nd- the split in the graft is filling in! 3rd- Damn me if Read more…
Today we’re at Stanford’s Eye Institute checking for tumors in Amy’s eyes. First she had a regular eye exam, looking to see if she had any common issues, like needing glasses, lazy eye, or any structural issues. (Nope) Then she checked her for any lich nodules (common with NF) and Read more…
10 weeks 5 days Post-op McFarland Bypass (done 2/21/2018) We tried to distract Amy with headphones and an iPad. Total fail. There was screaming. ? But, this new cast-guy is a wizard. Never have I seen anyone whip off a cast so fast! Very impressed. Wow! Look at that lateral view. Looks Read more…
8 weeks post-op (McFarland Bypass done 2/21/2018) Cast came off with minimal issues, as he just cut it off with scissors. However Amy was very distressed about him (and others) touching her special leg. It is SUPER sensitive. ? Here is some evidence of healing, but the bone hasn’t really incorporated Read more…
3 weeks, 6 days post-op (McFarland Bypass done 2/21/2018) A little rainy today, but we’re going to try and take the train anyway! (Baby’s 1st train ride!) Taking the train was so fun, and the food wasn’t bad either. I loved not being stuck in traffic for hours, and being Read more…
6 days post-op (McFarland Bypass done 2/21/2018) Today is our first post-op appointment. We need to get x-rays, and orders say through the cast. However, we might be getting a new cast today anyway, because somebody has already started walking in her cast, which is a no-no! So we are Read more…
2/21 5:03am. Surgery day. Couldn’t sleep, so Amy’s Daddy and I talked until 1, when we finally could sleep. Now here I am. AWAKE. I’m not supposed to be awake for an hour and a half. Sleep is impossible. ? My stomach is a tight knot. Last night she suddenly needed to cry herself Read more…
Time to head off on our hospital adventure! We are leaving now, and headed to our hotel in Sunnyvale. (Ronald McDonald House was full.) Amy will be the second case tomorrow, with surgery planned to begin about 8:30am. Thank you to everyone who has helped us prepare for this- especially Read more…
Okay, here we go, we’re on our way! First we have an appointment with Child Life at the hospital, then we’ll be headed to see Dr. Hoffinger to see what the surgical plan is. At the hospital, Amy loved playing with all the toys and coloring in the same-day surgery Read more…
Decision Day. Wait for her to break, or surgery? California, Texas, or Pennsylvania? Never have I ever, been so nervous. Amy, of course didn’t care. She’s playing and having fun while her daddy and I are sitting quietly whispering and wringing our hands. She has no idea that her Read more…