I think I’m still in shock from this appointment. I’m not going to lie, I cried. I cried enough that my nose ran- and inside a mask, that is decidedly unpleasant. But I’m getting ahead of myself. I was scared of this appointment. Maybe not afraid, per se, but very, Read more…
I don’t have a whole lot of good to say, so I will make this short and to the point. (I also don’t have a lot of pictures, since my phone died. Sorry.) 2nd McFarland Bypass (Surgery Date 12.2.2019) 2 months Post-Op AP View This x-ray looks re-markedly similar to Read more…
Wow. Long long long day! The drive was short today, only an hour and a half. (Gotta love those 1pm appointments!) Lucky came along (of course!) to get her cast removed too. She was a huge help playing Mario Kart. We arrived and were fairly quickly ushered into a room. Read more…
Amy absolutely astounds me. Her recovery from this surgery has really been night and day different from her last time. At 4 days Post-Op, she was pretty much her old self. She had only taken a single dose of narcotic medication since discharge and was happily on Tylenol. She was Read more…
I was super excited for this post-op, and because of that, I was inevitably a little disappointed. Rather than a true post-op, this turned out to be more of a wound check. We arrived bright-eyed and bush tailed, and with two whole minutes to spare! lol Amy was quite determined Read more…
Wow. One year. It’s astonishing how fast this year has flown. A year ago we were so afraid. “Is it broken?” “Is this the right choice?” “What if it doesn’t work?” “Will it heal?” “What will the outcome be?” So much fear and uncertainty, and yet, here we are. One Read more…
So, today was the day. Dr. Hoffinger said that Amy would start to feel better when one of two things happened: A) Her graft heals to the point that the bone hardens at the bottom, ending/lessening her pain. B) Her graft breaks, releasing the pressure on her leg and ending/lessening Read more…
So today we headed back to Emeryville to see Dr. Hoffinger. So that means, we get to ride the train! ? It is SO much better than driving. It takes the same amount of time (or sometimes less), and costs about the same. Also, breakfast! Anyways, we had a very Read more…
Today, Amy’s little brother had his first NF appointment with his geneticist. Amy tagged along, so that we can start getting their yearly NF appointments synced up. The appointment went well- nothing super surprising. Her brother has NF1 *gasp!* and they need to have their blood pressure and spines checked Read more…
Today was another hard day. It started at Zero Dark 30 with screaming. I have no idea what time it was, I just ran to her bedroom while she howled. She begged me to make it stop, and for the first time as I massaged her, I felt it. A Read more…