It’s not that I mind being accidentally kicked with it. I don’t mind being stepped on with her plaster foot. Although I am a little grumpy about her sanding away at my wood chairs. That kinda sucks. She is walking Read more…
So here we are, day after her appointment, and here I sit, a little grumpy. First, my child is in pain, because her cast hurts. I think the angle her knee is bent at is too extreme. It’s forcing her Read more…
We arrived about 30min early, and stood in a short line (there were 2 families in front of us). We never received our new patient packet, so we had papers to fill out. Plus we needed to turn over her Read more…
So, tomorrow is the big day, taking a big step in our CPT journey. We are meeting with our first doctor at Shriners Children’s Hospital, and I’m not going to lie – I’m nervous. I’m hoping for the best, but Read more…
Amy saw the orthopedist today. He gave me a little more padding so I can continue to pad the top of the cast until Friday when it will (probably!!!) come off. Daddy also neglected to put a diaper on her Read more…
So, I got a phone call today, and Amy has been officially accepted for care at the Shriner’s Hospital, which is wonderful. But, her appointment is set for 9/2, which is more than 6 weeks away. So that’s a bummer. Read more…
One Step Forward! I got an email today from Dr. Paley from the Paley Institute! I had asked if there was anyone out here that he had confidence in that performed his Paley X-Union procedure. Sadly, the answer is no. Read more…
The plan for Amy? I have no idea. Once her orthopedist said that her condition was out of his area of expertise, he referred us to Shriner’s Children’s Hospital. They have her medical records, and should get back to me Read more…
Why? Because of friends. Specifically, new Facebook friends. I haven’t really been very open about our journey yet. For me, that’s unusual. When My older daughter had her first seizure, the first thing I did (well, after calling family) was Read more…
So… We’re waiting. 1 to 2 weeks to hear from Shriner’s. But I’ve never been good at waiting with my thumb up my butt. So… Research. This is going to be a long play. Like, greater than a decade. So, Read more…