This is Amy.
She was born perfectly healthy in the summer of 2014. Just before she turned 2, she began to inexplicably limp. After a couple months of tests, she was diagnosed with one of the most frustrating and difficult orthopedic conditions there is: Congenital Pseudarthrosis of the Tibia.
As of September 2023, she has had:
13 casts
14 braces
10 orthotists
5 orthopedic surgeons
and 3 surgeries
to help attempt to heal her leg.
We’re not at the end of the road yet…
This is the story of her continuing journey.
Click here to Read Amy’s Journey
Click here to read just the Highlights of Amy’s Journey
Iiiiiiiiiiiiiiiiiiiiiiiiiiiiiiit’s x-ray day!!! I’ve really, really, really been looking forward to today for quite some time. I was a little nervous that she had hurt herself, but mostly hoping for more evidence of positive progress. Read more…
Today, my baby got to do something she has waited YEARS for. WIth doctor permission, she finally, FINALLY, was able to jump in a Bouncy castle. She LOVED it!!!
Another day, another brace. Having recovered from Covid, our orthotist Chuck has returned. Today is kinda same-old same-old with another new brace, copying a previous design. Look at her go! Okay, Mischief Managed. Now, anyone Read more…