So here we are at last! And like any “regular” appointment, we need to start with x-rays. She’s getting so good at taking them, she never fights anymore, and holds so still. “Amy! Let me count those toes so I know they’re all there.” “Grandma! Don’t touch my toes!” Read more…
Amy started preschool and is involved with a program called “Solely low”. This program caters to kids with low-incidence disabilities, such as children who are blind, heard of hearing, or have severe orthopedic impairments. At 2.5 years, and at no cost to us, she gets to attend preschool 2 days Read more…
My poor sweet baby. Look at her ankle! It’s so swollen and hurt, but she never complains. We have to find a better solution! Thank goodness we’re seeing Dr. Hoffinger in a couple days. I’m going to ask to be transferred to another orthotist, one that is local. That should Read more…
Here we are, my little babies ready to meet yet another doctor. Dr. David A. Stevenson is a pediatric geneticist. I was trying to get in touch with him at the university in Salt Lake where he was dong a clinical study on NF patients with CPT. Turns out he Read more…
So, we drive 1.5 to 3 hours (depending on traffic) to get to Diablo Prosthetics and Orthotics. After taking a three trips out to solve our brace issue, they took pity on us and came to our house. (OMG, that is so nice!) Then he handed me this brace, and Read more…
It’s a testament to Stanford that I called in desperation to find a way to help lessen my child’s pain, and they were happy to get me in the next day. So thankful for their understanding, and all the toys in the waiting room to keep my child busy while Read more…
Look at my poor baby Oh, this looks like it hurts so much. Poor baby, I must get in to see Dr. Hoffinger right away. 🙁
Look what we have, Brace #2! We talked about calcium, vitamin D, physical therapy, socks, brace care, long-term plans, milestones, frequency of brace changes/x-rays/visits… It feels SO good to have a plan! Lauren and I decided to keep her old brace, as well as those that will come after. It’s a Read more…
Look who’s headed back to see Dr. Hoffinger! We hadn’t realized, her brace is way to big around, and too short since she’s grown. Guess we need to make a new one! Amy was not a fan of having a mold taken of her leg. Not sure if it will Read more…
We’re here! It’s time for a second opinion – we HAVE to find a new doc. I don’t think the doc at Shriners will be able to heal Amy’s special leg. Hopefully this new doc can? Wouldn’t you figure? Insurance authorization is all messed up, so we spent a few Read more…