Since the x-ray, we’ve been thankfully free of the cramps that hurt her so. However, mornings continue to be a struggle. She complains of aches and pains, and limps terribly. Then, in latter parts of the day, she seems fine, running, jumping, and dancing. As I write this, I seem Read more…
Today was another hard day. It started at Zero Dark 30 with screaming. I have no idea what time it was, I just ran to her bedroom while she howled. She begged me to make it stop, and for the first time as I massaged her, I felt it. A Read more…
Sometimes I feel like CPT is a roller coaster. Things have been pretty good for a long time. Halloween was so fun, and Amy surprised me by hardly riding in the wagon at all, preferring to a dash from one house to the other. Wednesday night she had ballet, and Read more…
So, I decided to do it. I’m acting against doctor’s orders. Because, rebel. I’ve been thinking about this since I posted Tuesday, and I finally decided to do it. Why the hell not? So, here’s the deal. Amy has an Exogen Bone Stimulation System, right? It has an unlimited number Read more…
Well, we hoped it would last til the 19th… it didn’t. So superglue gets a great big ?? from us. No Bueno. So, who you gonna call? FACEBOOK CPT GROUP Seriously, these men and women are invaluable to me! Anyways: One person suggested superglue ?? Two people suggested contact cement Read more…
Well, the last repair lasted 6 days, so at least the glue held a little. But obviously, we need help. So first off, I scheduled I scheduled a visit with our orthotist at Hangar for a little brace TLC. Among other things, we’ll get the straps replaced, maybe redo her Read more…
So, a day after celebrating her not broken brace, guess what? Ugh! And it’s Friday night, so… that’s lame. So, Amy’s dad to the rescue. We’re trying this guy first. Hopefully it works. As annoying as this is, it’s really nice to have such a no-big-deal problem to deal with. Read more…
Some would say my kid can’t dance ballet because she’s in a brace with no ankle movement. But guess what? You’d be wrong. She’s only had 3 lessons, and while she’s no phenom- but she LOVES it! I’m hoping this experience will bring strength and flexibility back into her leg. Read more…
Dear Amy’s Family and Friends, As of this moment, it has been 2 years, 2 months, 2 weeks, and 4 days since we found out about Amy’s Special Leg. Since that moment, we have done everything we could to help her to beat this disease, and thrive in spite of Read more…
Yay! It’s here! They overnighted it to us- very cool. Hopefully now, we can get some better healing at the bottom of her graft. ?? It comes with the device, a charger, the strap, and ultrasound gel. Plus a bunch of reading material. During treatment, no problems, all smiles. A single treatment Read more…