Life with CPT
Repair #4
Well, we hoped it would last til the 19th… it didn’t. So superglue gets a great big ?? from us. No Bueno. So, who you gonna call? FACEBOOK CPT GROUP Seriously, these men and women are invaluable to me! Anyways: Read more…
Life with CPT
Repair #3
Well, the last repair lasted 6 days, so at least the glue held a little. But obviously, we need help. So first off, I scheduled I scheduled a visit with our orthotist at Hangar for a little brace TLC. Among Read more…
Life with CPT
At Least it’s Not Broken?
So, a day after celebrating her not broken brace, guess what? Ugh! And it’s Friday night, so… that’s lame. So, Amy’s dad to the rescue. We’re trying this guy first. Hopefully it works. As annoying as this is, it’s really Read more…
Orthotics
Brace TLC
I feel the need to celebrate a little today. Amy has always struggled with her braces. Once we found how to make her comfortable (Brace #3) she proceeded to start smashing through them. They would be remade 2 or even Read more…
Life with CPT
A Ballerina in a Leg Brace
Some would say my kid can’t dance ballet because she’s in a brace with no ankle movement. But guess what? You’d be wrong. She’s only had 3 lessons, and while she’s no phenom- but she LOVES it! I’m hoping this Read more…
NF1
Optic Tumor Check
Today we met our new doctor, Dr. Beres. Amy will be seeing her from now on to ensure that if she develops any tumors in her optic nerves, we can treat them quickly. Unfortunately, there’s no train nearby, so we Read more…
Life with CPT
Amy’s New Home on the World Wide Web
Dear Amy’s Family and Friends, As of this moment, it has been 2 years, 2 months, 2 weeks, and 4 days since we found out about Amy’s Special Leg. Since that moment, we have done everything we could to help Read more…
Orthopedics
Post-op #6
6 months 4 weeks post op (McFarland Bypass done 2/21/18) The incorporation at the top of the graft looks as amazing as the bottom looks awful. ? So, the news is not fantastic. It’s just not healing well at the distal end. ? On Read more…
Life with CPT
Exogen Bone Stimulation System
Yay! It’s here! They overnighted it to us- very cool. Hopefully now, we can get some better healing at the bottom of her graft. ?? It comes with the device, a charger, the strap, and ultrasound gel. Plus a bunch of reading Read more…
Research
Bone Stimulation
So, Amy’s doctor just called. The news is not bad, but it’s not good either. Amy’s graft, while intact and doing its job, isn’t healing as well as we would like at the distal (bottom) end. So, we’re going to Read more…
