I heard from Dr. Hoffinger today! He is very pleased with Amy’s new x-ray! He said, “Keep doing what you’re doing, keep going to that church, saying those prayers, doing those rain dances, whatever you’re doing, KEEP IT UP! Change nothing, and come see me in a month.” Amy’s (awesome) Read more…
So, today was the day. Dr. Hoffinger said that Amy would start to feel better when one of two things happened: A) Her graft heals to the point that the bone hardens at the bottom, ending/lessening her pain. B) Her graft breaks, releasing the pressure on her leg and ending/lessening Read more…
So today we headed back to Emeryville to see Dr. Hoffinger. So that means, we get to ride the train! ? It is SO much better than driving. It takes the same amount of time (or sometimes less), and costs about the same. Also, breakfast! Anyways, we had a very Read more…
Today, Amy’s little brother had his first NF appointment with his geneticist. Amy tagged along, so that we can start getting their yearly NF appointments synced up. The appointment went well- nothing super surprising. Her brother has NF1 *gasp!* and they need to have their blood pressure and spines checked Read more…
Last night was one of the longest nights in my life. Amy had a terrible night filled with muscle cramps. I feel like I’ve hardly slept, and Lauren is a total zombie. All through the night, the silence was suddenly split by screams that would break your heart. We medicated Read more…
Well, today was the day. We’ve been using the Exogen bone stimulation for 6 weeks now. Results are typical in 6 to 12 weeks. So, what do we think??? X-rays. The image on the left is from 4 weeks ago (post-op #6) and the one on the right is from Read more…
6 months 4 weeks post op (McFarland Bypass done 2/21/18) The incorporation at the top of the graft looks as amazing as the bottom looks awful. ? So, the news is not fantastic. It’s just not healing well at the distal end. ? On the positive side we’ve only been doing bone stimulation for Read more…
Yay! It’s here! They overnighted it to us- very cool. Hopefully now, we can get some better healing at the bottom of her graft. ?? It comes with the device, a charger, the strap, and ultrasound gel. Plus a bunch of reading material. During treatment, no problems, all smiles. A single treatment Read more…
4 months 4 weeks 3 days Post-op McFarland Bypass (done 2/21/2018) Couple things to take note of: 1st, up at the top the graft used to stick out a lot more. Now it’s not. It’s HEALING!!! ??? 2nd- the split in the graft is filling in! 3rd- Damn me if Read more…
We bought new shoes today, always a struggle, but I found a pair of cute sandals at Payless. I took a little video because she decided she wanted to walk. She really only feels comfortable when holding onto to something/someone. 11 weeks, 3 days post-op