Amy absolutely astounds me. Her recovery from this surgery has really been night and day different from her last time. At 4 days Post-Op, she was pretty much her old self. She had only taken a single dose of narcotic medication since discharge and was happily on Tylenol. She was Read more…
12/10 5:00am It begins. I’m on my phone. Not terribly nervous, but can’t sleep. Waiting for the numbers to click to 5am. It finally does, and the alarm rings. Okay. We’ve got this. We dress, with terse words between Amy’s Dad and I. Snipping and back biting happen, stress – Read more…
Delivery day! I was grumpy today, because Amy’s Little Brother took a small part of her wheelchair off. I ordered the part he took (and lost!) from Medline (the wheelchair company) but I’m hopeful it will turn up. (Ugh!) 3 year olds, am I right? Positives: With shipping it was Read more…
I feel like we have waited ages for thie appointment. Amy has been out of school, but then suddenly over the weekend, she seemed to be better. She even said she didn’t want to take her wheelchair to see Dr. Frick. She was really mad when I insisted. But I Read more…
Here we are. Exactly 2 weeks from my last post. Exactly 1 day after hugging my baby while she cried, because I don’t have the power to make it stop hurting. For the last two weeks, she has spent more and more time in her chair. Every day for the Read more…
I caved. I wrote Dr. Frick early, told him about the bone grafts, and my confusion. He returned my email in less than 4 hours. Impressive!!! Here is his reply: I did speak w Dr Karol- she recommended bone grafting the site that has not healed. She does not typically Read more…
So, we managed to get into Hanger to see Cammie pretty quick, so that’s a blessing. So I was super happy to give Cammie the good news that Amy had not fractured. *high five* We talked about adjustments to the bow side, and to the gaping side. She said that Read more…
So, we pulled the Exogen out of storage, put the gel on, attached it to her, got her set up with a show, and let her turn on the Exogen. The first thing is showed was the calendar filled with X on each day, because we hadn’t done treatment in Read more…
Here we are. Back at Stanford. It was only about 2 months ago that we were here saying goodbye to Dr. Hoffinger. This is also where we met him. Maybe lightning will strike twice? Anyways, today we are meeting Dr. Frick. Dr. Frick was recommended to us by Dr. Stevenson, Read more…
I can’t even begin to tell you how I feel right now. Amy’s Dad is all but dead set against Florida. On top of being at odds with him, I’m freaked out about financials with 4 other kids to care for, and me still not working. I’m sure that he Read more…